We like to support our communities as much as possible. Please consider the following request:
You are invited to participate in this survey if you are living with a rare disorder in Aotearoa, New Zealand, or if you are the primary carer. The questions refer to the person living with the rare disorder.
A disorder is considered rare when it affects fewer than or equal to 1 in 2,000 people. If you are not sure if your disorder is rare, please contact enquiries@raredisorders.org.nz
Your responses will help shape a better future for the rare disorder community.
Thank you for taking the time to participate.
Please let me know if you have any questions,
Ngā mihi
Alanna Peck
https://raredisorders.org.nz/get-involved/survey-2025/
Alanna Peck
Engagement
Rare Disorders NZ
Email: engagement@raredisorders.org.nz
Phone: 0272951766
